Self Help Clearinghouse

Caregivers / Families of Nursing Home Residents

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

CAPS (Children of Aging Parents)

National. 65 groups. Founded 1977. Non-profit membership organization dedicated to the needs of caregivers of the elderly. National network of support and offers information, referral and counseling.
Write:
Children of Aging Parents
P.O. Box 167
Richboro, PA 18954
Voice: 1-800-227-7294 or 215-355-6611
Website: http://www.CAPS4caregivers.org
Verified: 5/5/2008

Well Spouse Association

International. 60+ groups. Founded 1988. Provides emotional support to spousal caregivers of the chronically ill and/or disabled through support groups, round robins, mentor programs, online chat forum, respite weekends, national conference and a quarterly newsletter. $25/yr but minimum $5 for financial hardship cases. Guidelines and assistance available for starting new groups.
Write:
Well Spouse Association
63 W. Main Street, Suite H
Freehold, NJ 07728
Voice: 1-800-838-0879 or 732-577-8899
Fax: 732-577-8644
Website: http://www.wellspouse.org
E-mail: info@wellspouse.org
Verified: 5/5/2008

ElderCare Rights Alliance

Statewide model. Founded 1972. Promotes the principles of justice and dignity in the long-term care system through education, advocacy and action. Individual advocacy and advocacy training, crime victim support, community education, family caregiver training, support and training for nursing home Resident and Family Councils education.
Write:
ElderCare Rights Alliance
2626 E. 82nd St., Suite 230
Bloomington, MN 55425
Voice: 1-800-893-4055 or 952-854-7304
Fax: 952-854-8535
Website: http://www.eldercarerights.org
E-mail: mwandersee@eldercarerights.org
Verified: 11/19/2007

National Family Caregivers Association

National. Founded 1992. Dedicated to improving the quality of life for family caregivers through support and validation, education, information, public awareness and advocacy. Information and referrals, quarterly newsletter, resources and literature.
Write:
National Family Caregivers Association
10400 Connecticut Ave., Suite 500
Kensington, MD 20895-3944
Voice: 1-800-896-3650 or 301-942-6430
Fax: 301-942-2302
Website: www.thefamilycaregiver.org
E-mail: info@thefamilycaregiver.org
Verified: 10/2/2007

ElderCare Online

Online. Founded 1997. Provides daily support for caregivers. Biweekly e-mail newsletter includes articles, news releases, self-care tips, etc. Online chats and message boards covering a broad range of topics. Some chatrooms are run by authors and professionals. Free caregivers book. Offers software for medical planners, taxes, etc.
Website: http://www.ec-online.net
Verified: 9/25/2007

Family Caregiver Alliance

Online. Unmoderated listservs for caregivers to share strategies, information, education, support and ideas with each other. Provides free fact sheets and newsletter.
Write:
Family Caregiver Alliance
180 Montgomery St., Suite 1100
San Francisco, CA 94104
Voice: 1-800-445-8106
Fax: 415-434-3508
Website: http://www.caregiver.org
E-mail: info@caregiver.org
Verified: 10/11/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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