Self Help Clearinghouse

Charcot-Marie-Tooth Disease

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Hereditary Neuropathy Foundation

International network. Founded 2001. Sharing and caring for those with Charcot-Marie-Tooth disease and other hereditary neuropathies. Extensive library of support materials and resources available. Publishes informational brochures and children's book.
Write:
Hereditary Neuropathy Foundation
1751 2nd Ave., Suite 103
New York, NY 10128
Voice: 212-722-8396
Website: http://www.hnf-cure.org
E-mail: info@hnf-cure.org
Verified: 9/19/2007

Charcot-Marie-Tooth Association

National. 25 affiliated groups. Founded 1983. Information and support for patients and families affected by Charcot-Marie-Tooth disorders (also known as peroneal muscular atrophy or hereditary motor sensory neuropathy). Referrals, newsletter, phone help, support groups and conferences. Assistance starting similar groups.
Write:
Charcot-Marie-Tooth Association
2700 Chestnut St.
Chester, PA 19013
Voice: 1-800-606-2682 or 610-499-9264
Fax: 610-499-9267
Website: http://www.charcot-marie-tooth.org
E-mail: info@charcot-marie-tooth.org
Verified: 5/7/2008

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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