Self Help Clearinghouse

Dystrophic Epidermolysis Bullosa

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DEBRA of America

(Dystrophic Epidermolysis Bullosa Research Association) National network. Founded 1980. Support and information for families affected by epidermolysis bullosa. Promotes research, provides education for patients, families and professionals, emergency financial support, emergency wound care supplies, New Family Advocate program, newsletter, biennial national conference, information and referrals.
Write:
DEBRA of America
5 West 36th St., Room 404
New York, NY 10018
Voice: 212-868-1573 or 19866-332-7276
Fax: 212-868-9296
Website: http://www.debra.org
E-mail: staff@debra.org
Verified: 12/20/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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