Self Help Clearinghouse

Dentatorubral Pallidoluysian Atrophy

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Dentatorubral Pallidoluysian Atrophy (DRPLA) Network

International network. Founded 1999. Support and information for persons affected by dentatorubral pallidoluysian atrophy, a rare genetic disorder, that leads to physical and cognitive problems. Phone support, pen pals, online and e-mail discussions.
Write:
Dentatorubral Palidoluysian Atrophy Network
1426 46th Ave.
%Frank Marone
San Francisco, CA 94122-2903
Voice: 415-753-5695 or 1-800-499-7803
E-mail: bmsca@juno.com
Verified: 5/8/2008

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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