Self Help Clearinghouse

Hermansky-Pudlak Syndrome

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Hermansky-Pudlak Syndrome Network

International network. 2 affiliated groups. Founded 1992. Mutual support and education for families affected by Hermansky-Pudlak Syndrome and Chediak Higashi Syndrome. Networks families together for support. Newsletter and annual conference. Supports research.
Write:
Hermansky-Pudlak Syndrome
1 South Rd.
% Donna Jean Appell
Oyster Bay, NY 11771-1905
Voice: 1-800-789-9477 or 516-922-4022
Fax: 516-624-0640
Website: http://www.hpsnetwork.org
E-mail: hpsnet@worldnet.att.net
Verified: 12/20/2007

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For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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